Responses - Declarations / DPA / Advance Directives / Talking Points

Living Wills: Have They Failed? (2010)

[Comment: Yes, they [Living Wills] have [failed], and most of them are downright dangerous. However, note the example of short-term ventilator assistance for pneumonia. This is probably new information for most people. This is why I tell my patients who are wondering about “living wills” about a protective durable power of attorney and that they might consider not signing off on any specific treatments or care.

Much of what people know about such things as feeding tubes and ventilators is not accurate and it’s virtually impossible to predict a future situation.
Would you sign an operation permit before you have any problems?

Wouldn’t you would want to know all relevant information beforehand in order to make a good decision?

Then why sign an advance directive to refuse all sorts of basically undefined treatments or care that might save or improve your life, especially when you are still healthy? N. Valko RN]
The great health reform debate over alleged death panels has fizzled. Lawmakers guaranteed that by stripping provisions supporting end-of-life planning from legislation enacted last month.

What remains is the status quo. It’s left to individuals to decide if they want to think about their medical destiny at life’s end, talk to their families and make their wishes known — as it has always been.

Some doctors initiate these discussions before people are at death’s door, but most don’t. Despite intensive educational efforts, only 30 percent of adults have prepared an advance directive: a living will or a durable power of health care attorney appointing a surrogate decision-maker. To many experts, this indicates that current approaches to advance care planning aren’t working and that a fresh approach is needed.

In particular, experts criticize living wills that lay out the kind of medical care people might want in the future under various circumstances.

The documents are overly vague, often not available when needed most, and frequently difficult for medical providers to interpret, they say.

“Living wills have failed to achieve their promise,” says Dr. Muriel Gillick, a specialist in geriatrics and palliative care at Harvard Vanguard Medical Associates in Massachusetts.

What’s needed instead are better conversations between doctors and patients, and patients and their families, she said. For their part, doctors should clarify patients’ current medical status, how it’s likely to change, what medical interventions may be necessary, and what benefits and side effects can be expected.

Patients, also, need to take a different approach. While many ask their doctors “is my condition curable?” or “how long do I have?” few think to ask “what level of disability lies ahead and what do I need to do to prepare for that,” said Dr. Maria Silveira, an assistant professor of general medicine at the University of Michigan.

These conversations necessarily involve ambiguity, uncertainty and complexity, which often characterize medical care at the end of life, according to Dr. Terri Fried, a professor of geriatric medicine at Yale School of Medicine. “So much of what we confront are gray areas, which living wills don’t address,” she said.

Take someone with moderately advanced dementia who develops pneumonia after food goes down his windpipe. What if his living will says “I never want to be on a respirator” but a brief period on the breathing machine might be helpful while the pneumonia is being treated? Fried asks. If the intervention wins another year or two of life, is it worth it? What if repeated bouts of pneumonia are likely, given the man’s deteriorating condition?

“We need to move away from a legal model of filling out forms to a social model of having conversations about values, preferences and goals of care at the end of life,” said John Carney, a vice president at the Center for Practical Bioethics in Kansas City.

Other experts agree, but say it doesn’t have to be an either-or proposition.

In her Michigan practice, Silveira initiates discussions with patients when they have a sudden deterioration in health: for instance, when someone with emphysema becomes dependent full time on oxygen or is being hospitalized more frequently.

If a person has a living will, that can become part of the conversation, Silveira said. “Anything that helps me understand how a patient thinks about these issues is helpful,” she said. Silveira recently published research in the New England Journal of Medicine showing that seniors with living wills usually get medical care consistent with their stated preferences.

Instead of saying advance care planning doesn’t work, medical experts should be teaching doctors how to have these conversations with patients, says Dr. Linda Emanuel, professor of geriatric medicine at Northwestern University’s Feinberg School of Medicine.

“The debate should be over the best way to honor the wishes of the individual, whatever those might be,” Emanuel said. “In that light, this isn’t a polarizing issue at all. It’s something we can all believe in.”
[ By Judith Graham CHICAGO TRIBUNE 04/29/2010 ]